We had Eli's surgery scheduled for this friday. But in lieu of having the surgery we are instead waged in a war with our insurance company who sent us a nice letter stating they are denying coverage of the surgery. Nice, eh.
And since we don't have a spare $64,000 we are appealing their decision.
Not so appealing.
Eli is worth it. And as his mother I am his advocate.
For those of you interested in the medical details you can read below. If not, I won't bore you... just skip down to the bottom.
Eli has a very abnormally shaped head. You can't tell this from most pictures of him as the abnormality doesn't translate through pictures. We have had two ct scans done and seen several specialists who agree that it hasn't affected his brain, but was created as a result as his positioning (or rather, lack of proper positioning) as a baby and young toddler. And while the surgery is not a life or death issue...it is medically justified. It is something that will impact the rest of his life if not fixed.
Folks, we can't even get a bike helmet to fit on his head.
How can they say it is not needed?
I want to walk him through the cubicle mazes of the insurance company and bring along a bike helmet and invite the powers that be that decide these things to try and get it on his head.
But instead I am rationally getting second opinions, rounding up letters from specialists and pediatricians, taking pictures, and googling the mess out of how to write an effective insurance appeal. Any suggestions are welcome!
Am I frustrated? Yes.
Am I worried? No.
I know that the Lord wouldn't have provided every. single. penny. we needed to bring him home only to stop now.
I was just hoping it wouldn't have to be such a fight.
Bring out the mama bear in me. Eli is worth it.